Preparing for New Genetic Data Management Requirements

Former Chairman of NCVHS Privacy & Security Subcommittee Helps Dispel Myths About New Law

Healthcare organizations have stronger reasons to review and modify their policies governing health information because of the recently enacted Genetic Information Nondiscrimination Act (GINA). Signed into law by President Bush in April, GINA has already generated some confusion and myths about what it will require and who and what it covers.

One thing is certain, however, healthcare organizations, employers and insurers will have to take a new look at their policies and procedures governing patient and employee health records.

Genetic information is not neatly segregated in records and a wide array of other federal and state laws also apply to this data.

To cut through the clutter and misinformation, Health Information Privacy/Security Alert sponsored a 90-minute seminar:

Preparing for New Genetic Data Management Requirements

Participants are briefed on:

• The scope of the new law;
• What data and activities the law covers and what it does not cover;
• The law's effect on research activities;
• The new categories of genetic information that have been created;
• What areas you should start looking at regardless of the regulations that will be proposed and implemented;
• The approaches that states already take under their own laws;
• What role state laws on genetics will play under any set of regulations; and
• The challenges the new law creates for electronic heath records.

Who Should Listen

The Faculty

Mark A. Rothstein, served as Chair of the Subcommittee on Privacy and Confidentiality of the National Committee on Vital and Health Statistics, a key HHS advisory committee, from 1999 to 2008. He holds the Herbert F. Boehl Chair of Law and Medicine and is Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. Professor Rothstein has concentrated his research on genetics, health privacy, occupational health, public health law, and employment law. He is a former president of the American Society of Law, Medicine and Ethics.

Sonia Suter, has been a law professor in the George Washington University Law School since 1999 after holding a Greenwall Fellowship in bioethics and health policy at Georgetown and Johns Hopkins Universities. Prior to attending law school, she earned a masters degree and achieved Ph.D. candidacy in human genetics. She then worked as a genetic counselor for two years. Her scholarship focuses on legal issues in medicine and genetics as well as bioethics.

Continuing Education Credits

• All seminar participants will receive a certificate of participation
• 1.5 IAPP Credits

CD Ordering

The CD recording with all course materials are excellent educational and briefing resources: $275

Download the form at http://www.melamedia.com/07_30_order.form.pdf and fax it to 703.619.4912