EXPERTS EXPLAIN ILLINOIS COURT CASE THAT ROCKED HIPAA DE-IDENTIFICATION EFFORTS

Alexandria, VA – June 23, 2004 -- An Illinois court ruled that although an expert could re-identify records from the state’s cancer registry, it was still hard to do and the state should release the records. The June 9 decision in The Southern Illinoisan v. Department of Health has roiled policymakers, researchers and data managers.

 

Why?

 

Organizations can escape some HIPAA privacy requirements if they de-identify records. This decision raises new questions over what that means.

 

To dispel the confusion, Health Information Privacy/Security Alert is sponsoring Practical Strategies for De-Identifying Patient Data for Research and E-Health Records.

 

The July 13 audio seminar features Dr. Latanya Sweeney, Ph.D., who the court acknowledged as a unique expert in the field. Dr Sweeney will discuss practical aspects in creating data de-identification programs.In addition to being a recognized expert, Dr. Sweeney is Assistant Professor of Computer Science, Technology and Policy at Carnegie Mellon University, where she directs the Laboratory for International Data Privacy.

 

De-identification will become more important as the White House fosters e-health records. All organizations will have an incentive to use de-identified data whenever possible to reduce the risk of accidental or malicious releases of sensitive information.

 

The seminar also features: Judith E. Beach, Ph.D., Esq., Vice President and Chief Privacy Officer for Quintiles Transnational Corp., which created one of the nation’s most successful data de-identification programs; and Dennis Melamed, editor of Health Information Privacy/Security Alert.

 

PARTICIPANTS WILL LEARN:

  • When It Makes Sense To Establish Data De-Identification Programs
  • How De-Identification Programs Can Save Money and Resources
  • Budgeting For De-Identification
  • Different Models For De-Identifying Data
  • The Pros And Cons Of Outsourcing

And more